Poor Lilly

  
Wow,Almost 2 1/2 weeks into Lilly being sick,and we still have no clue what is going on.We have done a stool sample,multiple blood tests,and a celiac panel.All results have come back negative except the celiac panel,we are still waiting for results which should be here in the next day or two.
   I have to admit I'm exhausted,it was been a couple of very long weeks filled with cleaning up vomit and diarrhea.On payday I'm going to invest in a plastic tarp to cover Lilly's whole bedroom floor.I'm so afraid the carpet is going to be ruined and we rent so I cant have that :(
   I feel so bad for my little girl,she is so miserable and spends most of her time curled up under a blanket watching movies or on my lap.I have tried to just put all my housework aside and give her my all,but its hard as we are nearing 3 weeks of her being sick.
  

Lillian Update

   Lilly has been sick off and on for 6 days now.Alternating between horrendous diarreah and vomiting.The fever seems to be gone for now,I had finally decided maybe she was better til tonight....She threw up all over her bedroom floor,I have cleaned up enough yucky stuff this week to last me awhile,but hey,at least she figured out to get out of bed and vomit on the floor(I just put all clean bedding on her bed tonight!) lol Im getting worried because this seems so out of character for her,but since she cannot tell me what is wrong I have been trying to guess,giving motrin,7up,pedialyte,at different times.Poor girl,breaks Mommys heart when either of them are sick :(  ( Lilly not feeling well this week)

   On a happier note Lilly is finally seeing a Pediatric Developmental Specialist on Thursday,the specialize in Autism,Developmental Delays,and Sensory Issues.I am very excited for this appointment and I so hope I am not disappointed in the doctor.I hope and pray they finally have some answers for us.I almost think the hardest special needs have to be the unknown ones that nobody has answers for.I have struggled for almost 3 years with some pretty strange stuff with Lilly and begged our Ped for answers he doesnt have,its frustrating to say the least!
   We had a playdate with a friend yesterday (I truly thought Lilly was well again or I never ever would have taken her out!)whose little boy is 14 months younger than Lilly and it was kind of upsetting to see that Lilly is pretty much on the exact same age level developmentally other than the fact that Lilly can talk more (if she chooses to) but other than that she layed on tne floor and played with a couple small toys but setting them in a frisbee,or sitting in my lap.
   I have been watching her closely the past month or so,well ever since I went to a big Autism conference,and its so hard to describe her except she is-Lilly lol my little girl who has a few very strange quirks and is anti social lol.Some days I try to will myself into believing its all in my head but then something happens and it all just slaps me hard in the face (usually at like 2:30am) when I wake up to feces all over the floor and wall,her face,hairbed,everything.Nights like that in the past I sat down and cry,and I beg God why? Why my little girl?Why me?I think I have finally gotten to a point in my life that I just thank God for giving her to me and for not taking her away the different times she has quit breathing or been so sick.Honestly I struggled in the beginning,dont get me wrong,I always loved her with all my heart but it was extremely hard to bond with a new baby that never slept or quit screaming.There were days,many days I laid her in her crib and shut the door and went and took a hot shower or listened to music for a few moments just to get calmness in my heart.I still have days like that,but they are much fewer and farther in between,I have learned how to cope with the stress,not like before when we were barely surviving.
   First of all,I always get up and shower and dress BEFORE I get the girls up.I need that little bit of time to pamper myself before I start my day.
   Secondly,the girls lay down for 2 hours EVERY afternoon,I need that time in the middle of the day to relax or get caught up on things,have a hot latte,and some days I take a short nap.I wouldnt let myself nap for the longest time because I told myself I was wasting precious time I could be using to scrub the kitchen floor or fold laundry,I have learned if Im exhausted it is ok to nap so I am refreshed when the girls wake.
   Thirdly,bedtime is at 7pm EVERY night unless it is a very very special occasion like Halloween or Performance night (for Daisy).Not only does that give me and Nick time alone to spend together relaxing it also keeps Lilly on a tight schedule and she seems to do much better that way.She will now bring me her blanket at betime and ask to go to bed if I am even running a few minutes late.
   Fourthly,I have learned to say NO when people call me and ask me to do something or give someone a ride,if Im feeling overwhelmed I now say "No,Im sorry I cant today" this was a very,very hard one for me because I have always over extended myself for other people and I have realized my girls and my home now must be my top priority.
   Alot of days I feel like poor Daisy gets cheated out of time that should be set aside for just her so on occasions I have been getting Daisy up from Nap early or letting her stay up a little later after Lilly goes to bed,Some nights I lay in her bed with her and just spend time talkign with her and enjoying her,I always want her to know how much I love her.She was such a good girl today even I was surprised lol she sat and snuggled with Lilyl while they watched Happy Feet (Lillys favorite movie)even tho it wasnt her choice of movie then she helped me pick uup all the toys and make Lillys bed fro her.I love Daisys sweet caring spirit,she is so much fun to be around.

Poor Lilly

   Poor Lilly has not been feeling well for a couple days

she was throwing up yesterday and then had horrendous diarrhea all night.I washed all of her bedding and blankie,scrubbed carpets,and bathed her multiple times since last night.I'm exhausted,but Daisy has dance tonight and she kind of cannot afford to miss it because her huge performance is in a couple weeks so practice times are limited and now we are down for the count!

   So hoping for a better night tonight for all of us!Nick went and got her some pedialyte and she is enjoying it so I suppose that is good,I hate giving her artificial sugary stuff like that but she needs to gain her energy back and be well hydrated.
   We got about 8 inches of snow last night and it is supposed to snow again tonight so Im debating of whether or not I should go get groceries to stock up or not today.I really dont  want to drag poor Lilly out although the weather is beautiful right now so maybe I should anyhow lol not to mention I need to stock up on a few medical items such as tummy meds,motrin,tylenol,pedialyte,cough drops etc.It would be nicest to be prepared for sickness unlike last night....lol
   I cut out 2 more sweater dresses for the girls last nightbetween scrubbing the floor and bathing Lilly lol I hope to sew them tonight while the girls are in bed,they have quickly become a favorite in our house!Not only for the girls but for me as well!I love to sew them they are so quick and easy and the girls always look so sweet in them with tights,and they are sooo versatile!

Broken Finger

   OUCHIE!!!!!!!
   I haven't been able to post in a while because I have been relaxing and nursing a very smashed,broken finger.Last week i went to make a run out to the dumpster,totally forgetting that I had opened all the upstairs windows...The breeze created a powerful crosswind which slammed the front door shut just after I had opened it,smashing my left middle finger completely snapping the top part of the bone off inside my finger.It hurt terribly bad but its finally feeling a little better :)

off to the doctors again

   This afternoon its off to the doctor again for Lilly.She haas been sick for about 10 days now with a cough,runny nose and fever.The fever went away but the cough and green runny nose still lingers.Im pretty sure she has a sinus infection so I decided to run to the clinic and get her checked out so maybe she can start feeling better :)

The Magical Cure for a Sick Baby

   Lilly is very sick AGAIN! I actually thought she was beginning to get well,and wham she is sicker than she was to begin with.So,I got out sparkly,princess lip gloss for both girls,along with a new Polly Pocket Princess and Lils still would not stop crying,A dose of Tylenol,a nap,and the movie UP didnt work either....
   So....out came the food coloring and bubble bath... all polly pockets and petshop pets were dumped into a purple bubble bath and two little girls jumped in right behind them!(yes i know the water looks black in the pics but I can assure you it wasnt lol)It was 2 very happy little girls in my house for over an hour :)
                                        

Sick Again...

   SICKNESS.....
   It just doesn't ever seem to end here.The girls and I are sick again with head colds,sore throats,fevers,and coughs...So,once again we have just been lazing around and trying to get well.I have been taking Pseudophed but it doesn't really seem to be making any kind of difference,so I guess we'll just be having another lazy day laying around,napping,drinking steaming hot tea,and watching movies together,watching the snow swirl outside the windows.Today I am very thankful for a warm place to live and plenty of good food.We serve an awesome God!

Sick Again

   I have been totally preoccupied at home with everyone being sick again.So far in past 2 weeks we have had colds,stomach flu AND croup! IT was a little rough for a few days to say the least!Lilly was throwing up everywhere for 12 hours with terrible diarrhea for about 2 days.I had been sick coughing and sore throat for a week before I came down with the flu yesterday.I had been counting hours til bedtime yesterday I was so exhausted and finally I was able to go to bed around 9:30 when about an hour and a half later I heard Daisy coughing,I got up and went in  her room and sure enough she had CROUP! on top of everything else lol so I put her in my bed and we opened the windows all the way and about froze our selves to death(esp me with my fever from the stomach flu lol) but she was finally able to stop coughing and breath.

   Today everyone seems a little better,Lilly still has a really yucky nose and my guess is she is getting a sinus infection,her birthday is tomorrow and she will be 2!I can hardly believe how fast time flies!I guess I need to hurry up and get busy,I still have a birthday dress to sew on time for the birthday dinner tomorrow!