OUCHIE!!!!!!!
I haven't been able to post in a while because I have been relaxing and nursing a very smashed,broken finger.Last week i went to make a run out to the dumpster,totally forgetting that I had opened all the upstairs windows...The breeze created a powerful crosswind which slammed the front door shut just after I had opened it,smashing my left middle finger completely snapping the top part of the bone off inside my finger.It hurt terribly bad but its finally feeling a little better :)
Last Monday evening (after our very long day) Lilly went and spent some time with Nick's mum while we took Daisy to play mini golf for the first time with friends.It was calm and peaceful and I was finally able to relax and just give Daisy all my time and attention,we all had a wonderful evening.
After golfing we took Daisy to Barnes and Noble and she got to pick out 2 Fancy Nancy books and we all shared Frappucino at Starbucks,it was so much fun.
Today is one of those days...
Today we went to the library and she cried and carried on for most of the time we were there because she didn't want to be in the stroller,and because she didn't want any books.
Then we went to the park with friends and walked around the lake,Lilly screamed the entire time,I had to carry her the whole way around the lake,and it was one friggin long walk!(I forgot the stroller,but you can guarantee that wont ever happen again!lol Blah,then I had a fleeting thought of stopping at the liquor store and buying the biggest bottle of vodka I could find and drink my troubles away,then I thought of all the stuff my kids could get into and make a huge mess of and decided that wasn't worth it.So I brought them home and put them to bed.Ahhhh the peace,the quietness of nap time,blissful! lol
The adapted jammies did NOT work!Lilly still managed to get them off and poop and pee all over her room :( Honestly,when I realized even the jammies weren't gonna work I sat and cried,I sobbed til I felt a calm peace flood over me.I realized no matter what God will not give me more than I can handle.
Honestly having a child with such complex special needs is so very hard and daily I feel like I'm a bad parent.Daily I feel that somehow it is my fault that Lilly has the issues she has.I feel that somehow I created the mess that we are in,like somehow I could have prevented this,but deep down I know there is nothing I could have done and that now the next step for me is to be able to come to a total peace and calm about Lilly's special needs and keep reading and studying and searching until I find the help my daughter needs.I love Lilly with all my heart and it makes me so sad to see her so miserable all the time.I only wish I knew what she was thinkin,what she is experiencing inside.I wish I somehow knew how to give her peace and happiness,how I could make her sensory and anxiety issues better.I love my kids ever so much and I know full well being a parent is never easy,however being the parent of kids with special needs is even harder.That being said,I want to become an even better,more caring,more intune mother and do my best to be the very very best mum I can be!
I have so many things to be thankful for!
We have a new addition!!Meet Bella,Lillys new best friend
Lilly is struggling alot with her sensory issues lately so I have been trying to incorporate more and more sensory activities throughout our day.Last night was our first activity with shaving cream,Lilly was not sure what to think!Daisy loved every minute of it!
It has been a huge issue with Lilly taking off all her clothes at night and pooping and peeing all over her bedroom for months now.I have tried everything from taping her diapers on to putting on onesies with backwards diapers,backwards jammies,you name it I tried it.
Last week I went to Wal-mart looking to get Lilly a couple pairs of pajamas and I found an awesome deal with little girls jammies marked down to $1!I bought her about 6 pairs and I bought a few 12 inch zippers.Tonight I finally got time to sit down to the sewing machine and start sewing on the first pair.I had several things I needed to alter/adapt to make the jammies work for us.First off the jammie legs were a little too long on the size 3T but the 24month were just too snug,so I put a growth tuck inthe bottom of the legs so we could let them out in a few months.Then I needed to make them so she couldnt get them off to smear feces all over the walls,so I sewed the shirt to the pants and put a zipper in the back.So far good luck!She cant get them off!But...she is way mad about it!!!
Here are pics of what I came up with.The first pic is just to prove I got such a good deal on them :)
We finally have warm weather!I am soo excited :) I got the tomatoes planted and outside,the lettuce is growing quickly and the girls are very excited to be able to play outside!We even had snow a week ago so warm weather has been slow in coming this spring.
We are all doing well,and I totally love my life!
